| Obviously, the
real answer here is to SEE A DOCTOR. We generally recommend
that a Colon & Rectal Surgeon should be the treating physician
if at all possible.
Due to the location of the abscess, Colon & Rectal Surgeons have had
more training in diagnosing and treating Pilonidal abscess than other
doctors and are far less likely to misdiagnose a Pilonidal. Given the
location of Pilonidal Abscesses and Sinuses, they can be easy for
general practitioners and family doctors to misdiagnose as Anal
Fistulas, Anal Abscesses, Boils, Sebaceous Cysts, Hemorrhoids,
bruised tailbones or even Sciatica. It
happens every day... Pilonidal
Abscesses are classified by the medical community as a disease
of the colon and rectum even though they affect neither.
A Pilonidal is, at the
most basic level, a boil that has gone very, very bad.
Pilonidals are not technically cysts since they do not form a sac.
They are an abscess that is created from an infected follicle.
Self Diagnosis Basics:
Pilonidal Abscesses usually
form just to the side of the top crease in the buttocks. The sinus
opening(s) (if there is one) are typically along the center
(midline) of the crease.
The lump can be as small as a pea or larger than a golf ball. Usually the lump will hurt when you press on it - if
it's infected it will hurt A LOT. If you have a sinus, it will
typically drain a nasty smelling discharge that can be brownish,
whitish, clear or streaked with blood. Some people don't get a
"lump" if they have a draining sinus - the lump forms as infected
fluid builds up inside the cyst. Some abscesses can be very
deep in the tissue and there will be no visible sign at all.
Many people note lower
back pain as problems with their abscess escalate. There is no
known tie, but theories from the message board have suggested that
the pressure from the cyst is crowding nerve endings heading to the
spinal cord, most likely the sciatic nerve. It also has been
suggested that most Pilonidal sufferers tend to "sit funny" to try
and get comfortable. This throws the back out of normal
alignment. Most people who have lower back pain have found
that it disappears after the abscess is treated or removed.
Pilonidals tend to take
one of several courses:
Acute: excruciating
pain in the tailbone area, with an obvious inflamed lump at the top
of the buttock cleft. This one is a pretty easy call and any doctor
who misdiagnoses this should lose their license to practice. When a
Pilonidal Cyst is infected (inflamed, acute, abscessing, flaring up)
it will swell and make it almost impossible to sit, stand or lie
down since any movement seems to make the pain worse. A lot of
people first hear the word Pilonidal when they are carried into an
ER screaming in pain.
Messy but painless:
for those who have sinus holes, their experience with the disease
may never reach the acute stage since the holes allow the abscess to
drain rather than swell. Some people have minimal drainage with no
odor, other people have rivers of drainage with an unmistakable
stench. Frequently the drainage will cause itching, which is your
skin responding to the fluid being excreted from the abscess.
Stealth Mode: some
people have lumps that they can feel, but cause very little pain or
sinus holes that only drain a few times a year. If this is you,
consider yourself VERY LUCKY. Be aware that a sleeping giant can
awaken and turn into either of the above unpleasant scenarios at any
time.
Tests:
There is not a lot of
testing that is applicable to Pilonidal Abscesses.
X-Rays will not see
Pilonidal Cysts. What they may be useful for, however, is detecting
Spina Bifida Occulta, which may be the cause of congenital cysts
(Sacral Dimples.)
MRI uses radio frequency
radiation in the presence of a controlled magnetic field to produce
high quality images. MRI scans will not usually see a Pilonidal
Cyst unless the scan is set at a very high resolution. The scans can
detect soft tissue swelling that indicates probable Pilonidal
activity. There are two types of MRI - with contrast or without.
With contrast involves using a dye and provides a much better
view of masses such a cysts. MRI assisted surgery is being used in
some Colo-Rectal applications.
MRI pictures of a
Pilonidal Cyst:

What else it could be:
The list of usual suspects
includes -
1) Coccydynia - rare
condition of pain in the Coccyx.
http://www.coccyx.org/.
2) If the infected area is
closer to the anus, it could also be an Anal Fistula (a tunnel that
goes between the colon and the outer portion of the anus) or a Peri-Anal
Abscess.
http://www.fascrs.org/brochures/anal-abscess.html
3) It might be a condition
in the same family as Pilonidal called Hidradenitis suppurativa,
which sometimes forms several "boil" like pustules in areas of the
buttocks.
www.hs-usa.org
4) There is also another
very rare condition called Chordoma (a rare, slow-growing, but
locally aggressive malignant tumor) that was discovered during
treatment for a presumed Pilonidal Cyst.
Correct diagnosis by a
"butt doctor" is a good idea if your abscess is located lower in the
buttock crease where it is possible to be an Anal Abscess or
Fistula.
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